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Rare
Autoinflammatory
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About Autoinflammatory Conditions
A20 Haploinsufficiency (HA20)
Blau Syndrome
Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
Cryroprin Associated Periodic Fever Syndrome (CAPS) – NOMID / CINCA / MWS
Dermatomyositis and Polymyositis
Familial Mediterranean Fever (FMF)
Mevalonate Kinase Deficiency (HIDS / MA)
Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis (PFAPA)
Recurrent Idiopathic Pericarditis
Schnitzler Syndrome
Systemic Juvenile Idiopathic Arthritis (sJIA)
Systemic Lupus Erythematosus
Tumor Necrosis Factor – Receptor Associated Periodic Fever Syndrome (TRAPS)
UK’s Autoinflammatory Patient Registry
Glossary
Get Support
Forum
Resources
Patient Experiences and Challenges in the Management of Autoinflammatory Diseases
Genetic Testing in England
Patients Rights
Hospitals
Drug Consultations and Policies
Fabrication or Induced Illness Awareness
Transition of Care: Adolescents
Rare, Genetic and Undiagnosed Conditions. Parliamentary APPG’s
Research Papers and Articles
Get Involved
Team Bore Climb the Three Peaks of Wales in 24 hours for Charity!
Mark Telkman goes walking in Switzerland and Italy!
Forced Family Fun (tripleF) We run in memory of Adam (VEXAS syndrome)
News
Rare Disease Day 2025: A Call For Universal Access And Coordinated Care
Children’s health risks becoming an afterthought, warn charities and Royal Colleges
Rare Disease Quality Statements (A survey)
NHS commissioning: plans to April 2026
ITV News focus on failing education system for disabled children
Living with Systemic Juvenile Idiopathic Arthritis (sJIA)
‘Raising Awareness About Autoinflammatory Conditions on a Global Scale’
RACC – UK receives Level 2 Disability Confident: Employer
Why the charity was born
Recurrent Idiopathic Pericarditis – Patient Experience 1
The impact of Recurrent Idiopathic Pericarditis – Patient Experience 2
Abby has Arthritis
Kindle Edition: FMF Super Heroes
Featured in: Health Europa
BPSU study – Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) [2020]
‘The abilities in me’ book series, by Gemma Keir
‘A Friend Named Effy’
About Us
Trustees
Medical and Scientific Board
Leaflets and Publications
Policies and Governance
Contact Us
About Autoinflammatory Conditions
A20 Haploinsufficiency (HA20)
Blau Syndrome
Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
Cryroprin Associated Periodic Fever Syndrome (CAPS) – NOMID / CINCA / MWS
Dermatomyositis and Polymyositis
Familial Mediterranean Fever (FMF)
Mevalonate Kinase Deficiency (HIDS / MA)
Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis (PFAPA)
Recurrent Idiopathic Pericarditis
Schnitzler Syndrome
Systemic Juvenile Idiopathic Arthritis (sJIA)
Systemic Lupus Erythematosus
Tumor Necrosis Factor – Receptor Associated Periodic Fever Syndrome (TRAPS)
UK’s Autoinflammatory Patient Registry
Glossary
Get Support
Forum
Resources
Patient Experiences and Challenges in the Management of Autoinflammatory Diseases
Genetic Testing in England
Patients Rights
Hospitals
Drug Consultations and Policies
Fabrication or Induced Illness Awareness
Transition of Care: Adolescents
Rare, Genetic and Undiagnosed Conditions. Parliamentary APPG’s
Research Papers and Articles
Get Involved
Team Bore Climb the Three Peaks of Wales in 24 hours for Charity!
Mark Telkman goes walking in Switzerland and Italy!
Forced Family Fun (tripleF) We run in memory of Adam (VEXAS syndrome)
News
Rare Disease Day 2025: A Call For Universal Access And Coordinated Care
Children’s health risks becoming an afterthought, warn charities and Royal Colleges
Rare Disease Quality Statements (A survey)
NHS commissioning: plans to April 2026
ITV News focus on failing education system for disabled children
Living with Systemic Juvenile Idiopathic Arthritis (sJIA)
‘Raising Awareness About Autoinflammatory Conditions on a Global Scale’
RACC – UK receives Level 2 Disability Confident: Employer
Why the charity was born
Recurrent Idiopathic Pericarditis – Patient Experience 1
The impact of Recurrent Idiopathic Pericarditis – Patient Experience 2
Abby has Arthritis
Kindle Edition: FMF Super Heroes
Featured in: Health Europa
BPSU study – Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) [2020]
‘The abilities in me’ book series, by Gemma Keir
‘A Friend Named Effy’
Forum
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